SDR Wars

The slug of meds the nurse gave Rhys late last night did the trick and he slept pretty much through the night stirring only when the nurse turned him which makes him sore.

Sometime around 7 the doctors came and removed his epidural. Ouch. Then out came the catheter he’s had in to go to the toilet. Big ouch. Then once his last meds we’re given his IV lines came out and the monitors we’re removed.

Following a slug of oral painkillers, Art, the physio showed up at the bedside. With the pain of last night fresh in the mind Rhys was very reluctant to be moved. Lot’s of coaxing and yelping got Rhys to sitting on the bedside with a proper bed head.

After a quick spin in a buggy Rhys was back in bed to watch DVDs.

By the afternoon physio session Rhys was very reluctant to be moved again. Again, a slug of oral painkillers and lots of coaxing and we made it to the physio room.

As you held his shoulders to move him you could feel the pain running through his body – but we got him onto the mats for some very gentle stretches. He managed to throw some balls at the end of the session which doesn’t sound impressive but is as much as can be expected at this stage.

To be fair to Rhys though he hasn’t actually complained or said he wants to go home or any of those things. Bar the pain he is getting on with it.

And so is Owen. He’s not had much attention from us as he’s been looked after by ace child minders Jenna and Valerie for much of the day.

I took Owen out to the roof garden here.

It’s immaculate and looks like it’s been tended with nail scissors. They’ve got these brilliant kaleidoscope lenses dotted around the flower beds. Love it.

It feels like the care is wrapped all around you in this place. From Rhys’ hospital room window you can see the hospital chopper coming in to land – the helipad is above his room.

By the time it’s close it feels like you could reach out and touch it – and whilst you hope whoever in it is OK, it’s presence is somehow reassuring.

Unexpectedly at about 8pm Dr Park appeared to see Rhys. He’s very impressed with the control Rhys already has over his toes, feet and legs. As I held Rhys legs I asked him to clap his hands.

Prior to surgery Rhys legs would become very stiff as he used his hands. It’s known as an ‘associated reaction’. It makes it very hard for Rhys to carry anything whilst walking as his muscle tone would be all over the place.

But holding his legs tonight the muscle tone barely changed as he clapped. It’s just a glimpse of the potential gains we hope to see.

And with him dosed up on meds for the night I’ll settle for that.

1 thought on “SDR Wars

  1. So happy to hear all this amazing news Gareth – you are all fantastic but of course, particularly Rhys!! and I’m thinking about you all so much. Big big kisses to you all xxxxxx

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